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Unread 07-02-2007, 12:08 AM
spareparts's Avatar
spareparts spareparts is offline
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Join Date: Oct 2006
Location: Raleigh, NC
Posts: 6,192
Default Re: I've ARRIVED

Reel, don't feel to bad, my 3 year old daughter has Eosinophillic Colitis ( she has an excees amount of white blood cells present in her intestine). It took 6 months of test and doctors, plus 3 endoscopies/colonostomies, 2 upper gi's, and 2 sigmoidostomy(please excuse the spelling, i can hardly pronounce it, let alone spell it). She's due for her latest colonostomy( her 5th) this Friday. She's been on a tube fed liquid diet since Halloween. She's handleing it a lot better than my wife and I are. We've found she's can't have any lactose(milk products) and fructose(sugar). The liquid diet is broken down amino acid proteen strings( really nasty) that is fed to her by pump into a tube that goes directly to her stomach. They've got to stabilize her system so it wont produce excess white blood cells, then we start testing for more foods that she's alergic to.

if anyone is interested for more information, go to www.apfed.org
thanks
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